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Combining various types of data would assist researchers in looking for previously hidden insights and patterns. Such information would be invaluable in helping us to understand diseases, develop treatments, plan health programmes and evaluate public health policy.
Research on TRUST can potentially lead to innovations and breakthroughs in healthcare in the form of improved clinical treatments, medical interventions, and healthcare management.
This means improving the understanding of what causes diseases and health conditions to develop, as well as evaluating the effectiveness and safety of new treatments.
Every individual’s unique biological profile could be the key to uncovering discoveries about the human body and health. If researchers have access to larger, more diverse datasets, the more likely it is that they will find something that can help you or someone else with a health condition.
TRUST is a national initiative that by the Government of Singapore and does not sell any data.
Data on TRUST can only be accessed by researchers that have been approved by our Data Access Committee (DAC) after a thorough vetting process. The data on TRUST do not include any identification records, such as NRIC numbers or names.
Datasets on TRUST are accessed and used based on permission granted and are anonymised in compliance with internal Government standards.
It is a criminal offence under Section 48F of the Personal Data Protection Act (PDPA) to deliberately attempt to re-identify someone. In addition to the legal safeguards, multiple process and technical safeguards are also in place to minimise the risk of re-identifying individuals.
This is through measures such as –
- Ascertaining the appropriate permission and relevant Institutional Review Board (IRB) approval (or waiver) are in place before research on TRUST is approved.
- Anonymising datasets according to internal Government standards.
- Establishing measures to safeguard data on TRUST.
- Establishing measures to safeguard data output out of TRUST environment. For example, exports of insights will be checked for re-identification risks before being allowed out of the TRUST environment.
Notwithstanding these measures, data on TRUST is anonymised data and hence not considered personal data. This means that the anonymised data on TRUST is not governed by the Personal Data Protection Act (PDPA).
TRUST has a Data Access Committee (DAC) that will review the scientific, clinical, health value of requests before concluding if the purpose of use is beneficial to the public and can generate social benefit. Applications for research projects on TRUST will be evaluated in accordance with the above-mentioned criteria.
We thank you for your interest in TRUST. Your data is valuable in helping us understand diseases, develop treatments, plan health programmes and evaluate public health policy.
TRUST does not collect data directly from individuals, but from public health institutions, research institutions or public agencies. When you provide permission to your data for research purposes, it allows institutions or agencies to share that data with and via TRUST within the scope of your permission. Be assured that datasets on TRUST are accessed and used based on permission granted and anonymised so that it is highly unlikely for you to be re-identified from the data.
As data on TRUST is de-identified and anonymised, TRUST would not be able to identify individuals from the data. Anonymised data is not considered personal data and thus is not governed by the Personal Data Protection Act (PDPA).
De-identification refers to the removal of identifiers (e.g. name, NRIC) that directly identify an individual. De-identification is sometimes mistakenly equated to anonymisation. However, it is only the first step of anonymisation. A de-identified dataset may be easily re-identified when combined with other forms of data that may be easily accessible by the public.
Anonymisation refers to the process whereby personal data is converted into data that cannot be used to identify the individual(s). Anonymisation is a risk-based process, which includes analysing risks of re-identification, before applying both anonymisation techniques and safeguards to prevent re-identification from occurring.
TRUST is a Singapore Government initiative. The platform is jointly developed by the Smart National Digital Government Office (SNDGO), Government Technology Agency (GovTech), Integrated Health Information Systems (IHiS) and Ministry of Health (MOH). TRUST is supported by MOH and the National Research Foundation (NRF) under the RIE plan.
Currently, TRUST is mainly supporting public health sector users and researchers from Singaporean public health institutions, institutes of higher learning and publicly funded institutions.